Dying To Live

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A quest for answers...........

We are here to share Kims story, a young mother who lost her life just one day after giving birth to a baby boy via c-section, we were misguided towards lupus as the cause.

 

    There are more than 7000 known Rare Disease, yet less than 500 have a treatment or cure.   1 in 10 people have a RARE disorder whether they know it or not.

 

 Ehlers-Danlos Syndrome is a hereditary connective tissue disorder that can also show up as a spontaneous mutation in an individual.

 I am slowing making my way back to the site to update it. I have been mostly keeping the dyingtolive.info Facebook page updated.

 

 
 
 
 

 

 
 
 
A RARE INSIGHT NEWSLETTER FOR RARE DISORDERS

 

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In memory of our fallen friends.

Know of any other research going on, tell us.