Dying To Live
Home
Kims Tribute
Neck/Scar Pics
About EDS
Favorite Links
Find Doctors
Guestbook
In the News
EDSHeirloomQuilt
A quest for answers...........
We are here to share a story of a young mother who lost her life just one day after giving birth to a baby boy via c-section, we were misguided towards lupus as the cause. A tribute to Kimmy
UPDATE: As much as I was hoping I was wrong, I am glad that we finally know a cause of concern. The geneticist of all days in the year, tried to reach me on Kimmy's birthday to tell me that London is positive for Ehlers-Danlos type IV. The pain I felt 13 years ago all of a sudden hit me once again. Please keep LJ in your prayers..........
EDS Video representing some of our families battle with Ehlers-Danlos.
Thank you to all the families, friends, doctors who helped us raise the $75,000 Dr. Dietz needs to get our mouse model project underway.....through the Chase Community Giving contest on facebook....helping EDS Network Cares, Inc. & EDS Today to raise the money to keep our mouse model project funded!
