Dying To Live

We are here to share Kims story, a young mother who lost her life just one day after giving birth to a baby boy via c-section, we were misguided towards lupus as the cause.

    There are more than 7000 known Rare Disease, yet less than 500 have a treatment or cure.   1 in 10 people have a RARE disorder whether they know it or not.

 Ehlers-Danlos Syndrome is a hereditary connective tissue disorder that can also show up as a spontaneous mutation in an individual.

 We wish everyone a happy new year and prosperity.  I have decided to take a break from advocating on a daily basis due to some family heath issues as well as a few other things and will work behind the scenes when possible.  Feel free to email or stay connected on the contact page.  Thanks!