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                           EHLERS-DANLOS DOCTORS IN THE U.S.

                                                                 List created by and for EDS families.

                                  Locate your state below, find a geneticist by state - click here

                                                          Doctor Reviews - click here

                                Free download of the Vitals eBook, Finding Dr. Right (28 pages)pdf






Dr David Liang - Cardiovascular Medicine Sub-Specialties: Marfan Syndrome, Cardiac Imaging and Echocardiography     300 Pasteur Dr A260 MC 5319 Stanford, CA 94305-2200   Phone:(650) 725-8246 

Scott M. Fishman, MD  Division of Pain Medicine, Anesthesiology, Pain Medicine  University of California/Ellison Ambulatory Care Center   4860 Y STREET, SUITE 3020 Sacramento, California 95817                                  Phone: 916-734-6824 Fax: 916-734-6827   smfishman@ucdavis.edu www.pain.ucdavis.edu 

Physical Therapy Joyce Warren and Thomas Oshimo Saint Francis Memorial Hospital, Center for Sports Medicine Outpatient Clinic 1777 Botelho Drive, Suite 110   Walnut Creek, CA 94596 Phone: 925-934-3536 

Dr. Timothy N. Beamesderfer MD Internal Medicine 7551 Madison Ave Citrus Heights, CA 95610                   Phone: 916-904-3000 

Dr. Frederick H. Hirshburg, MD Pediatric 7551 Madison Ave  Citrus Heights, CA 95610   Phone: 916-904-3000 

Joyce Warren and Thomas Oshimo - Saint Francis Memorial Hospital, Center for Sports Medicine Outpatient Clinic
1777 Botelho Drive, Suite 110  Walnut Creek, CA 94596  Phone: 925-934-3536


Dr John Oro - Neurosurgery/Medical Director of Neurosciences at The Chiari Care Center at The Medical Center of Aurora  1444 S. Potomac, Suite 170  Aurora, CO 80012-4541   Phone: 303-481-0035 phone




Dr. Zori - Geneticist   University of Florida College of Medicine 1600 SW Archer Rd Rm M-346 Gainesville, FL 32610 Phone: (352) 392-4104  

Dr. Elders - Rheumatologist  at UF Health Science Center  1600 SW Archer Rd Gainsville, Fl. 32610               Phone: 352-392-2961   Fax: 352-846-0617

Dr. Ali Saifi MD Internal Medicine & Dr Michael Yu Physical Medicine and Rehab Florida Med Center of Clearwater
1840 N Highland Ave, Clearwater, FL   Phone:727-442-3001  

Dr Sandy Kaufman MD Pediatric Anestheiologist 1613 Harrison Pkwy, Suite 200 Fort Lauderdale, FL 33323
Phone: 954-838-2371 or try 305-632-0789

Dr. Randolph Cohen MD Orthopedic Surgery Sports Medicine 1150 N 35th Ave Joe Dimaggio Pediatric Orthopaedic     Hollywood, FL    Phone: 954-986-6300 

Dr. Paul Benke - Geneticist 3435 Hayes Street Hollywood, FL 33021 Phone: 954-894-9344  

Dr. Dacelin St. Martin - M.D., FAAP - Dual-Certifications in both Pediatrics and Internal Medicine - PedIM Healthcare 1990 N Prospect Ave. - Lecanto, FL 34461   PHONE: (352) 527-6888

David W. Kays, MD - UF Associate Professor and Chief Pediatric Surgery Gainesville, FL 32610;            Phone: 352-265-0646 


Dr. Paul Fernhoff - Pediatrics, Genetics Emory University School Of Med Emory Genetics Clinic Building 2165 N Decatur Rd Decatur, GA 30033 Phone: 404.727.0490                                                           http://www.vitals.com/frame?url=http%3A%2F%2Fgenetics.emory.edu%2FFACULTY%2Ffaculty_bio_fernhoff.php 

Dr. Harbaugh - Pediatrician Children's Medical Group, P.C.
1875 Century Boulevard N.E., Suite 150 Atlanta, Georgia 30345 Phone: 404-633-4595 Fax 404-633-6637 http://www.cmg-pc.com/contact.html 

Dr. H'Doubler - Vascular Surgeon Vascular Institute of Georgia 5669 Peachtree Dunwoody Road, Suite 100 Atlanta, GA 30342 Phone: 404-256-0404 Fax: 404-847-0423  http://vascularinstituteofgeorgia.vasculardomain.co/handler.cfm?event=practice,physicians,detailphysicianID=11244 

Dr. Jay Miller - General Surgery, Vascular Surgery Emory Crawford Long Hospital or Piedmont Hospital 550 Peachtree Street North East Suite 1085 Atlanta, GA 30308 Phone: 404-351-9714

Dr. John Puskas MD Cardiac/Thorasic & General Surgeon 550 Peachtree Street North East Atlanta, GA 30308 Phone: 404 686-3391 

Dr. Alvaro Velasquez, MD Pulmonary 550 Peachtree Street North East Atlanta, GA 30308 Phone: 404-686-2505 




Dr. Liberty - Pediatrician Kids First Pediatrics 24600 West 127th Street Building B, Suite 345 Plainfield, IL 60585 Phone: 815-609-5437 Fax: 815-609-8111   http://www.kidsfirstdocs.com/ 

Dr. Barbara K. Burton, MD - Genetics, birth defects and metabolism Children's Memorial Hospital 2300 Children's Plaza, (Lincoln and Fullerton) Chicago, IL 60614-3363 OR Children's Memorial Outpatient Center 2301 Enterprise Drive Westchester, IL 60154 Phone: 1.800.KIDS DOC

Dr. Chris Malaisrie, MD/Vascular Surgery - Northwestern Medical Faculty 675 North St. Clair Street Chicago, IL 60611
Phone: 312-695-4965 or 312-695-0105- Janice Knuckey
Fax: 312-695-1903 

Dr. Timothy James, MD Vascular Surgery Central Du Page Hospital 25 North Winfield Rd Winfield, IL
Phone: 847-695-1620 Fax: 847-695-1954 

Dr. Scott McNaughton MD 2560 Foxfield Rd. Suite 160
St. Charles, IL 60174 Phone: 630-513-8734 Fax: 630-513-1199 

David M. Frim, MD, PhD - Professor of Surgery and Pediatrics Chief, Section of Neurosurgery - Center for Advanced Medicine  5758 S. Maryland Avenue  Chicago, IL 60637 or Comer Children's Hospital at the University of Chicago  5721 S. Maryland Avenue  Chicago, IL 60   Phone: (773) 702-2123 

Dr. Burton, Pediatric Genetics Specialist - Children's Memorial Hospital Phone: 773-880-4000

Dr. Kaufman, Lawrence M MD - Pediatric Ophthalmology & Eye Muscle Disorders  - St Joseph Hosp 2456 N WesternAve, Chicago, IL 60647  Phone: 773-235-2020


Dr. Lavallee - Sports Medicine (He has EDS) Sports Medicine Institute 111 W Jefferson Blvd Ste 100 South Bend, IN 46601  Phone: (574) 289-4764 OR 714 N Michigan St South Bend, IN 46601 Phone: (574) 647-7477


Dr Arnold Menezes - Neurosurgery - University of Iowa Medical Cen 200 Hawkins Drive Iowa City, IA  52242  Phone: 319-353-6367 

Dr. Stuart Weinstein - M.D. Department of Orthopaedic surgery University of Iowa    Iowa City, Iowa, 52242
Phone: 319-356-1872


Dr. Teresa A Reynolds, MD - Rheumatology - Wichita Clinic  3311 E Murdock St  Wichita, KS 67208
Phone: 316-689-9188




Dr. Rosemarie Smith - Geneticist Maine Pediatric Specialty Group  1577 Congress Street, Stroudwater Station Portland, ME 04102  ph: 207-662-1622  fax: 207-774-1814 

Dr. Marco Diaz - Cardiologist 119 Gannett Drive South Portland, Me 04106  Phone: (207) 774-2642

Dr. Ralph Stephen Amato, MD Geneticist 489 State Street Bangor, ME 04401 No contact info by phone 


Dr. Clair Francomano - Geneticist  GBMC 6701 N. Charles St. Baltimore, MD. 21204 Phone: 443-849-2000   http://www.gbmc.org/genetics/harveygenetics/Staff/francomano.cfm

Dr. Dietz - Pedicatrics, Genetics, Cardiology Johns Hopkins Outpatient Center (JHOC) 601 North Caroline Street Baltimore, MD 21205 Phone: 410-955-3071 Fax: 410-614-9246                             http://www.hopkinsmedicine.org/geneticmedicine/people/faculty/dietz.html 

Dr. Black - Vascular and Endovascular Surgeon Johns Hopkins Hospital Baltimore, MD Phone: 410-955-1708 http://www.hopkinsmedicine.org/surgery/faculty/Black 

Dr. Peter Rowe - M.D. Speciality-General Pediatrics and Adolescent Medicine at Johns Hopkins Children's Center David M. Rubenstein Child Health Building Room 2077 200 N. Wolfe Street Baltimore, MD 21287 Phone: 410-955-9229 Fax: 410-614-1178 http://www.hopkinschildrens.org/staffDetail.aspx?id=3226


Dr. Michael F. Murray, M.D. General Genetics Department of Medicine Brigham and Women's Hospital
Genetics Division New Research Building 77 Avenue Louis Pasteur 455 Boston, MA 02115 Phone: (617) 525-4542 http://www.hpcgg.org/Faculty/murray.jsp 

Dr. Mininder S. Kocher, M.D., M.P.H. - Children's Hosp. Sports Medicine 319 Longwood Avenue Boston, MA 02115    Phone: 617-355-3501 Fax: 617-730-0178 

Ronald V. Lacro, MD - Children's Hospital Boston, Department of Cardiology, Farley - 2   300 Longwood Avenue
Boston, MA 02115   Phone: 617-355-8794


Dr Bruce D Lawrence DO Orthopaedic Surgeon Greater Flint Sports Medicine Center 861 Health Park Blvd Grand Blanc, Mi. 48439  Phone: 810-953-0500 

Dr Peter Jebson MD Orthopaedic Surgeon Hand/Upper Extremity  2098 Main St Floor B1 Ann Arbor, Mi. 48103
Phone: 734-998-6541 

Dr Christopher Iacobelli MD Parkway Family Medicine 17200 Silver Parkway Fenton, Mi. 48430                      Phone: 810-714-9660 

Dr. Mark Vance DO Surgical Associates 3169 Beecher Rd  Flint, Mi. Phone: 810-767-1420 

Dr Cagnoli MD Rheumatology University of Michigan 1500 East Medical Center Drive Ann Arbor, MI 48109      Phone: 734-647-5900 

Paul Czarnecki - Physical Therapy  Greater Flint Sports Medicine Center Physical Therapy 861 Health Park Blvd Grand Blanc, Mi. 48439   Phone: 810-953-0095




Dr. Marcia C Willing MD PhD - Professor, Pediatrics Division of Genetics and Genomic Medicine - Medical Building Three Barnes-Jewish West County Hospital 1020 N. Mason Road, Suite 110 Creve Coeur, MO 63141 Phone: 314-454-6093  Fax: 314-454-2075 or St Louis Children's Hospital One Children's Place, Suite D, 2nd Floor St. Louis , MO 63110  Phone: 314-454-6093  Fax: 314-454-2075




New Hampshire

New Jersey

New Mexico

New York

Dr. Yellamaraju Ravi Kumar - Internal Medicine M.D. Medical Advisor for the WNY Branch of EDNF 12845 Broadway St. Alden, NY 14004     Phone: 716-937-3225  Fax: 716-937-6110 

Dr. Paolo Bolognese, MD Neurosurgeon The Chairi Institue  300 Community Drive Manhasset, NY 11030       Phone: 516-570-4400

Dr. Roger W. Kula MD Neurology The Chiari Institute 865 Northern Blvd. Great Neck, NY 11021                     Phone: 516-570-4400

Dr. Beamesderfer MD Internal Medicine 7551 Madison Ave Citrus Heights, CA 95610 Phone: 916-904-3000

Dr. John Pile-Spellman M.D. - Columbia University Medical Center in New York City 177 Fort Washington Avenue  MHB 8-So Knuckle New York,NY 10032 Telephone:(212)305-6515  Fax:(212)305-5476                   E-mail: jp59@columbia.edu 

North Carolina

North Dakota


Dr. Brad T. Tinkle, MD, PhD Clinical Geneticist - Cincinnati Children's Hospital Medical Center 3333 Burnet Avenue, Cincinnati, Ohio 45229-3039 Phone: 513-636-0121 Fax: 513-636-7297                 http://www.cincinnatichildrens.org/svc/find-professional/t/brad-tinkle.htm

Dr. Blair P. Grubb, MD Cardiology & Internal Medicine 3120 Glendale Avenue Toledo, OH 43614                   Phone: (419) 383-3925   (Patients complain does not have good follow up contact)

Dr. Scott Long MD Physical Medicine & Rehab - Group Health Associates Cincinnati 2001 Anderson Ferry Rd Cincinnati, OH 45238 Phone: 513-872-2000 Western Hills Phone: 513-922-1200 

Dr. Louis Flaspohler, MD Internal Medicine Rheumatology 2123 Auburn Avenue Suite 322 Cincinnati, OH 45219 Phone: 513-351-0800 

Dr. Chacko Alappatt, MD Internal Medicine, Rheumatology   1515 South Breiel Boulevard Middletown, OH 45044 Phone: 513-420-8195 

Physical Therapy Opal Riddle, Dawn Westfall, and Phyllis Schulte at Comprehensive Physical Therapy in the Greater Cincinnati area  http://www.comprehensiveptcenter.com                                                                            Milford Phone: 513-576-6338 or Hyde Park Phone: 513-871-5571 or Mason Phone: 513-336-7725

Physical Therapy Paula Melson, Shannon Darnell, and Stephanie Powell at Cincinnati Children's Hospital Medical Center http://www.cincinnatichildrens.org/   3333 Burnet Avenue Cincinnati, OH 45229-3039
Phone: 513-636-4200

Dr. Lars Svensson M.D. Ph.D. - Thoracic and Cardiovascular Surgery Cleveland Clinic Main Campus
Mail Code J4-1 9500 Euclid Avenue Cleveland, OH 44195 Phone: 216-445-4813 

Dr. John Mitakides - Dentist   2141 N. Fairfield Rd.  Beavercreek, OH (Dayton area)  Phone: 937-427-3131 


Dr. Elizabeth Taylor Albert, Rheumatology 9100 N May Ave  Oklahoma City, OK 73120                  Phone:405-840-4456  Fax:405-840-4295 

Dr. Susan Dimick, Internist 3317 East Memorial Road Edmond, OK 73013-7105 Phone: 405-475-0100 

Dr. Darren Hitt - Oklahoma Hand Surgery Center 10914 Hefner Pointe Dr # 200 Oklahoma City, OK 73120-5069   Phone: 405-748-6600



Paige Kaplan, MB, BCh - Metabolic Physician/Pediatrics; Division: Child Development, Rehabilitation and Metabolic Disease; Email: KAPLAN@EMAIL.CHOP.EDU- The Children's Hospital of Philadelphia 34th Street and Civic Center Boulevard  Philadelphia, Pa. 19104  Phone: 215-590-1000

Rhode Island

South Carolina

South Dakota


Dr. William Warner MD Orthopedic Surgeon 1211 Union Ave Campbell Clinic South, Suite 500 Memphis, TN 38104 OR 1400 S Germantown Rd Campbell Clinic Germantown, TN 38138  Phone: 901-759-3100 


Diana Driscoll, Optometrist (she has EDS)- Total Eye Care   6114 Colleyville Blvd. Colleyville, TX 76034
Phone:817.416.0333 OR 1834 Keller Parkway,Suite 100  Keller, TX 76248 Phone:817.431.4900                website:  http://theeyedocblog.com/2008/08/11/dr-diana-driscoll-speaks-at-the-ehlers-danlos-national-foundationmeeting/

Dr. Cosselli - Cardiothoracic and Vascular Surgeon 6770 Bertner Street, Suite C-350 Houston, TX 77030        Phone: (832) 355-9910    http://www.debakeydepartmentofsurgery.org/home/content.cfm?content_id=274&fac_pk=48&view=pt_full&menu_id=37

Dr. Benjamin Carcamo, M.D. 125 W. Hague El Paso, Texas 79902   Phone: 915 577-6889


Richard B Gremillion, Adult Rheumatology, Internal Medicine, Sports Medicine - South Valley Rheumatology  11333 S 1000 STE 275  Sandy, UT 84094   Phone: (801) 571-4100



Dr. Paul M. Spector, DO Osteopathy,Psychiatry, Pain Medication & Addiction & Substance Abuse 7329 Boulder View Lane Richmond, VA 23225 Phone: 804-320-8570 


Peter H. Byers, MD - Departments of Pathology and Medicine (Medical Genetics) Box 357470 University of Washington     Seattle, WA 98195-7470 Phone:206-543-4206 FAX:206-616-1899
website:   http://www.pathology.washington.edu/clinical/collagen/ 

West Virginia


Robert Kroll - Physical Therapist 10201 W Lincoln Ave., Suite 302, West Allis, WI 53227 Ph # 414-328-5888 Fax 414-570-0442 and office in Oak Creek, WI 8825 S Howell Ave., Oak Creek, WI 53154 ph # 414-570-0441 fax # 414-570-0442 

Dr. Phillip Giampetro - University of Wisconsin Hospital 600 Highland Ave. Madison, WI 53792
(608) 263-6400 (main) (800) 323-8942 (toll-free)

Dr. Elizabeth W. McPherson, MD - Marshfield Center
1000 N OAK AVE MARSHFIELD, WI 54449 Appointment phone: (715)221-7400 or (877)216-8535       website: http://www.marshfieldclinic.org/patients/?page=providerdetails&ID=81571

Dan Heffez, MD - Milwaukee Neurological Institute  2350 W. Villard Ave
Milwaukee, WI 53209   Phone: (414) 438-6500