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EHLERS-DANLOS LINKS

Who should MDs let die in a pandemic? Report offers answers

Child Safe Kits - This free kit can help protect your child by storing all of their important information in one safe place; fingerprint card enclosed.

NOMORECLIPBOARD - Create an online NoMoreClipboard.com account and in minutes you'll have an easy, secure way to manage medical information for everyone you care for, including your kids and aging parents.
MY FAMILY HEALTH PORTRAIT - This web site allows you to create a personalized family health history report from any computer with an Internet connection and an up-to-date Web browser.

MEDGLE- A very nice search your symptoms site.

PRESCRIPTION ASSISTANCE - Prescription assistance sites and also list of Pharmaceutical Researcher & Manufacturers.

AMERICAN ACADEMY OF PEDIATRICS - featuring the Native American Child Health Website.

DOCTOR DISCIPLINARY INFORMATION & SEARCH

NIAMS - Free Publications & CD's on Disorders 

WikiGenetics provides credible and up-to-date information on human genetics. It is a web-based encyclopedia on human genetics for the public. The content is generated by users who are allowed to view and to edit pages, frequently geneticists as well as members of lay advocacy groups. The site was initially created by Genetic Alliance in 2007 and has an advisory and editorial board.

ScanGrants is a free online listing of grants, scholarships and other funding opportunities in the health sciences. Our aim is to enable medical researchers, those involved in public and community health and those seeking to locate scholarships in the health sciences to efficiently find potential sources of funding so that they can work hard on science and health matters and not have to devote unproductive amounts of time searching for funding. ScanGrants has been adopted by various medical, public and academic libraries and offices of research administration in university settings.  Very good info. even grants for people with disorders.

Advocacy in Genetics: A Genetic Alliance Quarterly. Sign up for their newsletter. 

The New Genetics - National Institute of General Medical Sciences.