Dying To Live
A quest for answers...........
We are here to share a story of a young mother who lost her life just one day after giving birth to a baby boy via c-section, we were misguided towards lupus as the cause. A tribute to Kimmy
UPDATE: As much as I was hoping I was wrong, I am glad that we finally know a cause of concern. The geneticist of all days in the year, tried to reach me on Kimmy's birthday to tell me that London is positive for Ehlers-Danlos type IV. The pain I felt 13 years ago all of a sudden hit me once again. Please keep LJ in your prayers..........
EDS Video representing some of our families battle with Ehlers-Danlos.
Please help us by signing our petition to Make May Ehlers-Danlos Month across the United States to bring more awareness to this devastating disease!
Thank you to all the families, friends, doctors who helped us raise the $75,000 Dr. Dietz needs to get our mouse model project underway.....THANK YOU for helping EDS Network Cares, Inc. raise the money, visit http://ehlersdanlosnetwork.org/
Thank you Anita Burdzell for creating such a beautiful piece of future history with your EDS Quilt, thank you
http://dyingtolive.4mg.com/anitaquilt.html
London and Chyna after 11 years apart 10/08
You can email me with any questions at
